---
title: "Resources for working with sensitive data"
source: The Turing Way
source_url: https://github.com/the-turing-way/the-turing-way
licence: CC-BY-4.0
domain: data-and-analysis
subdomain: turing-way
date_added: 2026-04-25
---

(pd-sdpm-resources)=
# Resources for working with sensitive data 

## Presentations and webinars

* [Presentations](https://www.youtube.com/watch?v=J9kWkzK83i4&list=PLyeHH3bEQqIbgbw75gheV27nFF2ctPPpR&index=1) by [Zosia Beckles](https://youtu.be/J9kWkzK83i4), [Michele Voznick](https://youtu.be/w5v5d6r6irs) and [Tessa Darbyshire](https://youtu.be/jEFu1ykVI_I) on Responsible Data Management: Legal & Ethical Aspects as part of the [Fail to Nail it sessions](https://www.youtube.com/c/AI4ScientificDiscovery).
* [Presentation](https://www.youtube.com/watch?v=H2mv6q4WwOU&) by Rob Gommans on GDPR and the Processing of (Identifiable) Image, Audio, and Video Data for Scientific Research Purposes.
* [Presentation](https://youtu.be/_3bufely0c0) by Stephan Heunis on Brain research data and personal data privacy: practical tips to share and protect.
* [Presentation](https://youtu.be/eAKhI0qde2w?t=1104) by Walter Scholger on the GDPR with resources such as informed consent templates (18:30 - 38:50).
* [Presentation](https://www.youtube.com/watch?v=PSe2V1KTQ8w&) on handling personal data by Enrico Glerean and Päivi Lindström from Aalto University. 
See [here](https://www.aalto.fi/en/services/rdm-training) for the full course.
* [Presentation](https://www.youtube.com/watch?v=J457qBdQ3xo) on the GDPR by Rosalie Salameh.
* [Presentation](https://vimeo.com/362161972) and [article](https://www.smashingmagazine.com/2017/07/privacy-by-design-framework/ ) on **privacy by design**.
* [Presentation](https://www.youtube.com/watch?v=2WebuDlzEIw&list=PLG87Imnep1Sln3F69_kBROUrIbT5iderf&index=2) on Ethical and legal issues in data sharing by Hina Zahid.
* [Slides](https://osf.io/5xhya/) by Hanne Elsen on Privacy and the GDPR in the Research Life Cycle. 
* [Slides](https://www.rd-alliance.org/slides-webinar-how-share-qualitative-data-videos-and-interviews-october-27-2021) on 'How to share qualitative data: videos and interviews'.
* [Workshop materials](https://osf.io/em3da/) on data de-identification procedures for data sharing.
* [Presentation](https://www.youtube.com/watch?v=9wu_xGeYsQw) by Manolis Terrovitis on data anonymisation made easy.

## Reading

* [Data Privacy Handbook](https://utrechtuniversity.github.io/dataprivacyhandbook/) by Utrecht University. 
* [Sensitive Data](https://rdmkit.elixir-europe.org/sensitive_data) - from Elixir's RDMKit.
* [Protecting sensitive data course](https://mantra.ed.ac.uk/protectingsensitivedata/) by [MANTRA](https://mantra.ed.ac.uk/). 
* [Anonymisation and Personal Data](https://www.fsd.tuni.fi/en/services/data-management-guidelines/anonymisation-and-identifiers/) by the Finnish Social Science Data Archive.
* @Meyer2018personaldata
* @Tsai2016qualdata
* ARDC guide on [Publishing Sensitive Data](https://doi.org/10.5281/zenodo.7259742).

* Qualitative Data Repository Guidance on [Human Participants](https://qdr.syr.edu/guidance/human-participants).

* [Data Privacy Handbook](https://utrechtuniversity.github.io/dataprivacyhandbook) for researchers dealing with personal data at Utrecht University (NL) and beyond (work in progress).
